“But my symptoms are real!” :: Tourette’s syndrome outbreak sheds light on conversion disorder
If you’ve been following the apparent outbreak of a tic disorder in a New York high school, you know that investigators there have ruled out environmental causes linked to the school itself. Parents, outraged by the Tourette’s sydrome-like symptoms that have plagued twelve teenage girls in the past several month, are demanding answers. Unsatisfied by the lack of results from school investigators, public health officials, and the victim’s own doctors, they recently brought in the Erin Brokovich team to explore the test the ground water and more.
Health officials are now calling the illnesses with which the young women are presenting conversion disorders. Conversion disorders are psychiatric illnesses in which a person experiences physical symptoms without a physical cause. People with conversion disorder can demonstrate things like blindness, lack of muscle function, paralysis, or seizures.
Parents are reportedly not satisfied with this explanation for their daughters’ and community members’ illnesses. Indeed, watching video of the young women unable to talk, write, or function normally is disturbing, and it’s easy to see how the Le Roy High School community would be frustrated.
As I watched the Today Show’s interview with a few of the young women and their mother’s, you could see the visible vehemence when Dr. Nancy Snyderman suggested that the root of these issues could be psychological. The parents and teenagers quickly denied that this was possible, their justification that they weren’t under any stress and that their symptoms were real.
The thing is, the symptoms in a conversion disorder are real too. The person truly is experiencing tics, or muscle weakness, or difficulty walking. They really do seize – anyone can watch. These individuals are not making up their symptoms (that happens when someone malingers), and their development is not in the person’s conscious awareness.
This last piece is the rub, of course. If it’s not under conscious control, the person isn’t aware that there’s a psychological cause, and so there’s no way for them to deny or disprove it. Patients sometimes say things like, “But I just know something’s really wrong. I just know!” And the thing is, they’re right. There’s something wrong, really wrong. The only difference between the symptoms of conversion disorder and the symptoms of a physical illness is in the treatment. Conversion disorder symptoms are not going to respond, at least not long term, without psychological help.
I admittedly have no idea about the origin of the symptoms among these New York teenagers, and I would never purport to know. But what I am very aware of is the cultural backlash against the idea that our minds can produce physical symptoms.
It’s actually a bit dismaying to see how negatively people react to this idea, and how vehemently they deny it. I want to ask these individuals where they think all physical issues originate – in our brains! Why is it so unimaginable to think that psychological stress could create physical symptoms?
Our brains regulate our hormones and every function of our body, and yet we tend to see our minds as distinct from our bodies. The effects of this disconnect are far-reaching. I think that this contributes to everything from fertility issues to the flu to problems with our sexuality to distorted relationships with food. This is not to say that that all of these things have only psychological bases – certainly, that’s not the case. But we often fail to see how our psychological functioning influences these processes, and in doing so miss out on a real chance of improving our health.
My hope is that, regardless of what is determined to be the cause of these Tourette’s sydrome symptoms in New York, the parents will encourage their children to seek psychological treatment. Even if the cause is environmental, these young women could likely benefit from support around the trauma of the past several months.
you might be as outraged as the community.

